Sandra Marquis

Postdoctoral Fellow

 

Life-course transitions have been identified as among the most difficult times for the health care of people with intellectual/developmental disabilities (IDD) (Sullivan et al., 2018). In particular, the transition from youth to adulthood is very challenging with loss of structured day time activities, school completion, limited employment opportunities and transitions in health care providers from pediatric specialists to adult health services.  These challenges are occurring in the broader context of ongoing changes in the IDD population.  For example, my dissertation research demonstrated that the prevalence of children with IDD is increasing in British Columbia (BC) (Marquis et al., 2018).  At the same time, people with IDD are living longer (Patja et al., 2000). Overall, there is also evidence that adults with IDD experience poorer health and health care compared to those who do not have IDD and are at greater risk for costly health care use and premature mortality.

However, in BC, and elsewhere in Canada, there is very little information on the health of people with IDD.  Using populaiton-level adminstrative data available through Population Data B.C., my research project will generate new information on health care usage of individuals with IDD aged 15-24 years old as they experience the critical transition from pediatric to adult health services. A better understanding of the health care needs and health care usage of this group at the population level can help inform policies and programs that will ireduce negative outcomes for people with IDD and improve their life course trajectories.  

 

Supervisor

Research Classification

Research Interests

disability
intellectual/developmental disability
Population health
Administrative data
families

Research Methodology

Population-level administrative health data
Family systems
Life course perspectives

Research Options

I am available and interested in collaborations (e.g. clusters, grants).
I am interested in and conduct interdisciplinary research.
 

Publications

 

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